Tube feeding did have its share of dramas initially however. On some occasions we'd go to disconnect Sam from his feed in the morning, only to find the tube had disconnected itself from his gastrostomy button during the night and Sam would be lying in a bath of sticky iced coffee coloured formula!

Strangely, as soon as Sam commenced his tube feeding he never put anything in his mouth again except for his own fingers! He couldn't even be tempted with a chocolate biscuit! Sam remarkably adjusted to his new button and tube feeding routine as if it was the norm.

Within the next 2 weeks Sam was able to be part of some big family events. Aunty Caroline’s wedding to Tim was on the 8th of June (only 5 days after he left hospital), Michelle's birthday was on the 20th June, followed by his own 2nd birthday on the 30th of June. It was simply wonderful to have him home again for these family events.

Sam was happy and content as always, and was now putting on some weight. In fact after 2 weeks af being home he had put on 2 kilograms and was starting to look podgy!